rare disease

Update news rare disease

15-year-old woman gives birth to boy with rare Harlequin ichthyosis syndrome

A 15-year-old woman in the northern province of Yen Bai has given birth to a boy with Harlequin ichthyosis, a rare disease.

Vietnamese doctors successfully cure Wiskott-Aldrich child patient for the first time

The Central Paediatrics Hospital has announced that for the first time, its doctors successfully used a bone marrow transplant to cure a two-year-old boy who suffers from Wiskott-Aldrick syndrome (WAS).

Vietnamese scientists carry out genome sequencing to diagnose rare diseases

Scientists of the Genome Research Institute under the Vietnam Academy of Science and Technology are contributing to the accurate diagnosis of five rare diseases by using next-generation gene sequencing technology.

Nun becomes mum

Thich Minh Tai, a 41-year-old nun, is gently lulling her adopted baby girl to sleep when the infant hears a small noise and suddenly starts.

Doctors quietly fight rare diseases

They are pioneers in studying rare diseases and disseminating knowledge in the community. They do not work for money and have no interest in receiving honors.

Vietnamese doctors save Japanese man with rare heart disease

VietNamNet Bridge - Doctors of the Hanoi Cardiovascular Institute (Bach Mai Hospital) have saved a patient with an uncommon heart disease, which has a high mortality rate.